BIOUNCERTAINTY - ERC Starting Grant no. 805498
14th of November 2019: Research seminar - dr Jan Piasecki (Institute of Philosophy and Bioethics of the JUCM) - The dilemmas of research ethics in the era of learning health‐care systems
We have the pleasure to invite You for a research seminar in the ‘BIOUNCERTAINTY’ research project. The subject of the seminar is 'The dilemmas of research ethics in the era of learning health‐care systems' and it will be delivered by dr Jan Piasecki from the Institute of Philosophy and Bioethics of the Jagiellonian University Collegium Medicum. The seminar will take place on Thursday, 14th of November, at 5:30pm in room 25 of the Institute of Philosophy, 52 Grodzka Street.
Dr Jan Piasecki - assistant professor, principal investigator in the project: 'Ethical Principles for Learning Health Care Systems' funded by National Science Centre (Sonata 10, UMO-2015/19/D/HS1/00991).
Abstrakt: In my speech I will attempt to answer the question of how the ethical and conceptual framework (ECF) for a learning health‐care system (LHS) affects the main controversies in research ethics by addressing five problems: (a) What is the difference between practice and research? (b) What is the relationship between research ethics and clinical ethics? (c) What is the ethical relevance of the principle of clinical equipoise? (d) Does participation in research require a higher standard of informed consent than the practice of medicine? and (e) What ethical principle should take precedence in medicine? These questions allow to construct two opposite idealized positions on the distinction between research and practice: the integration model and the segregation model of research and practice. I then compare the ECF for an LHS with these two idealized positions. I argue that the ECF for a LHS does not, in fact, solve these problems, but that it is a third, separate position in the relationship between research ethics and clinical ethics. Moreover, I suggest that the ECF for a LHS raises new ethical problems that require additional ethical analysis and justification. My speech is based on the article that I wrote with V. Dranseika. The article contributes to the discussion on the relationship between research ethics and clinical ethics, revealing that although a learning health‐care system may significantly change the landscape of health care, some ethical dilemmas still require resolving on both theoretical and policy‐making levels.
Spotkanie odbędzie się w języku angielskim.